Cohesion, Flexibility, Symptom Distress, and Coping in Hospice Home Care Families with Cancer

Hdl Handle:
http://hdl.handle.net/10675.2/344116
Title:
Cohesion, Flexibility, Symptom Distress, and Coping in Hospice Home Care Families with Cancer
Authors:
Barnes, Catherine S.
Abstract:
The purpose of this study was to describe the hospice caregiving family’s response to the terminal illness of a family member. The conceptual framework for this study was adapted from McCubbin and McCubbin’s Resiliency Model o f Family Adjustment and Adaptation. A convenience sample of 30 families represented by two principal caregivers was evaluated at two data collection intervals: one week and four weeks after hospice admission. The setting was in the homes o f families who were accepted for care by either o f two hospice home care programs. A descriptive longitudinal design was used to examine the psychosocial family variables o f family cohesion, family flexibility, and family coping. The relationship between patient symptom distress and caregiver perceived symptom distress was also examined. Hospice involvement, as operationalized by number o f visits, was investigated for each family at both intervals. Poor intraclass correlations between the two caregivers showed that the FCOPES instrument did not provide a reliable measure o f the caregiving family unit; therefore, coping strategies were not analyzed. While no significant changes over time were noted for either family cohesion or family flexibility, families that fell in the outer range of the distribution and were isolated from other families had lower cohesion and flexibility scores at both intervals. These outlier families responded with a greater amount o f disagreement between family caregivers than did those in the remaining study sample. Caregiver perceived symptom distress was closely correlated to the patient symptom distress scale at both intervals. The caregiver’s perception of the symptom distress was a good indicator of the patient’s actual symptom distress. The number of visits by hospice personnel was not related to patient symptom distress or to family cohesion or flexibility.
Affiliation:
Not Listed
Issue Date:
Feb-1997
URI:
http://hdl.handle.net/10675.2/344116
Additional Links:
http://ezproxy.gru.edu/login?url=http://search.proquest.com/docview/304378623?accountid=12365
Type:
Dissertation
Appears in Collections:
Theses and Dissertations

Full metadata record

DC FieldValue Language
dc.contributor.authorBarnes, Catherine S.en
dc.date.accessioned2015-02-04T04:47:11Z-
dc.date.available2015-02-04T04:47:11Z-
dc.date.issued1997-02-
dc.identifier.urihttp://hdl.handle.net/10675.2/344116-
dc.description.abstractThe purpose of this study was to describe the hospice caregiving family’s response to the terminal illness of a family member. The conceptual framework for this study was adapted from McCubbin and McCubbin’s Resiliency Model o f Family Adjustment and Adaptation. A convenience sample of 30 families represented by two principal caregivers was evaluated at two data collection intervals: one week and four weeks after hospice admission. The setting was in the homes o f families who were accepted for care by either o f two hospice home care programs. A descriptive longitudinal design was used to examine the psychosocial family variables o f family cohesion, family flexibility, and family coping. The relationship between patient symptom distress and caregiver perceived symptom distress was also examined. Hospice involvement, as operationalized by number o f visits, was investigated for each family at both intervals. Poor intraclass correlations between the two caregivers showed that the FCOPES instrument did not provide a reliable measure o f the caregiving family unit; therefore, coping strategies were not analyzed. While no significant changes over time were noted for either family cohesion or family flexibility, families that fell in the outer range of the distribution and were isolated from other families had lower cohesion and flexibility scores at both intervals. These outlier families responded with a greater amount o f disagreement between family caregivers than did those in the remaining study sample. Caregiver perceived symptom distress was closely correlated to the patient symptom distress scale at both intervals. The caregiver’s perception of the symptom distress was a good indicator of the patient’s actual symptom distress. The number of visits by hospice personnel was not related to patient symptom distress or to family cohesion or flexibility.en
dc.relation.urlhttp://ezproxy.gru.edu/login?url=http://search.proquest.com/docview/304378623?accountid=12365en
dc.rightsCopyright protected. Unauthorized reproduction or use beyond the exceptions granted by the Fair Use clause of U.S. Copyright law may violate federal law.en
dc.subjectFamily Cohesionen
dc.subjectFamily Flexibilityen
dc.subjectFamily Copingen
dc.subjectSymptom Distressen
dc.subjectCaregiver Perceived Symptom Distressen
dc.subjectHospice Involvementen
dc.titleCohesion, Flexibility, Symptom Distress, and Coping in Hospice Home Care Families with Canceren
dc.typeDissertationen
dc.contributor.departmentNot Listeden
dc.description.advisorBennett, Geralden
dc.description.committeeThompson, William; Lamber; Ellis; Dunkinen
dc.description.degreeDoctor of Philosophy (Ph.D.)en
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